I follow your blog, and others, my partner Gary was diagnosed with Motor Nuerone Disease, two years ago.It started in his right foot, and he was due to have a back operation, and just prior to Christmas 2 years ago, he received the news that he had A.L.S.Gray like you is amazing, I am commend the bravery that you possess. We have two wonderful daughters, Samantha nearly 16yrs and Courtney nearly 14yrs. They are so good , although it’s hard for them,we have many alaugh as a family, and have done so much, perhaps things we would never have done, since Gary was diagnosed.There is two ways you can deal with this, one is to stick your head in the sand,and be morbid, or make the best of what you have as a family. We are very open, and the hardest thing for me, was answering the questions, that teh girls had, however as hard as it was, I knew I had to stay strong, as they wouldn’t come to me again if they upset me.They have a good understanding of M.N.D as a mum at the school died after 5 years with the disease.While studying as a Pre school teacher, I supported a lovely 36yr old with A.L.S. What an amazing guy, when I started with Rob, I had no understanding of the disease, however 20years on I would never have guessed that I would be dealing with it head on. Rob was really bad when I started with him, he had a two year old and a new baby,however he shared the same Occupational therapist as Gary, and it was pleasant to hear, he lastet 11years after I left, which was incredible.I wish you and your family all the best, as we totally understand what you are all going through. You are amazing. Take good care.
Iris and Gary York New Zealand

So glad you finished your album. I hope it does really well. My family wish you well in your ongoing battle with MND. Our thoughts are with you and your family. My youngest son was second from the right of the photo of the climbers on Kilimanjaro, which was on your blog. We lost his dad to NND, 24th November 2008. Keep fighting.